Wednesday, March 21, 2012

Diagnosis

I have been putting off writing this one. I hadn't decided if I was going to discuss it on a public forum at all. But I've been complaining about my health on here a lot, so since the Great Mystery Illness has finally been diagnosed I might as well share that here as well.

The problem is I have been vacillating pretty drastically between generally feeling optimistic to wallowing in self-pity. On a good day I am glad that I will now be able to begin a treatment plan and start taking those baby steps in the right direction; maybe even allow myself to feel hopeful about who a happy healthy me could be... Like at least now I know what's wrong and can be proactive about solutions. But on a pessimistic day, I envision my future like this:

I've been diagnosed with PCOS. It's named after one of its more visible symptoms - polycystic ovaries - but it is actually a hormonal imbalance. More specifically, it's having an excess of androgens (male sex hormones like testosterone). I'll use my most recent bloodwork as an example. Say the ratio of LH to FSH should be 1:1, imbalanced would be 3:1. My level was 5:1. What's funny is I just finished my first Anatomy course and actually know what all of these hormones do! Thats life for you.

But a lot of what has been going on health-wise over the past year makes SO much more sense now, there is a reason for all of it! It's been such a pain in the ass, but I'm glad that I harassed GPs and got second opinions and made them run tests and relied on my own instincts instead of allowing my concerns to be dismissed. And we've caught it before any of the really bad (bad as in horrifyingly embarassing) symptoms have had time to develop, so I try to tell myself that I'm ahead of the game. I found a really good article written by a dermatologist who has PCOS, she's honest and straightforward regarding what to expect but still manages to be humourous and optimistic about the whole thing. You can check it out here.

Its manageable. Thats the point. Yes, its life-long, and I will have to form my own posse of endocrinologists and technicians and dermatologists (and fertility specialists, if we decide that is something we want) - but its manageable. And its about time I started taking better care of myself anyways. Now I just have a good reason to go to the salon regularly, keep my cholesterol low and my blood sugar steady, go for walks, and get 8+ hours of sleep. Maybe once its under control I will feel better than I have in years! But since it is my life we're talking about I have to consider the possibility that it all goes to hell. Maybe I go bald and grow a beard. Maybe I do gain 160 pounds over the next two years and get the diabeetus. At least I'll have a good reason for that too...

*I've decided to leave comments open on this one, but since I know there are some poeple who will be tempted: Having been diagnosed by, and consulting with, actual experts - I do not require your "expert" medical opinion. However, soothing noises, supportive murmurs, and anecdotes about your mom's friend's sister with Happily-Ever-After endings are acceptable.

5 comments:

  1. Hi Liz,
    I've never even heard of PCOS so can't offer any anecdotes or happily -ever-afters....but I will send my supportive murmurs and soothing noises your way. Congratulations on persevering to get an answer...that is half the battle when you now know what you are dealing with. Now you can put all your energy into doing just that.
    Thanks for sharing what the Great Mystery Illness was...and know that I'll be cheering for you as you continue solving & dealing with your symptoms.
    Love,
    Sandra

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  2. Well I don't know anything about your condition, but I do have plenty of experience finding and building a health care team. There's lots of medical professionals out there who seem to practice by rote or routine, without actually listening to their patients, or thinking beyond what appears to them to be the most obvious explanation for the symptoms they're looking at right this moment.

    Kick those ones to the curb and move on - cause there ARE really good ones out there. After 3 years, I seem to have built a team that groks me, and has enabled me to live a normal life, despite my abnormal joint and muscle issues -- not to mention the mangled leg.

    Three years ago, I couldn't pick up my baby girl. Today I can throw all three of them in the air (and catch them!) We'll be praying you find a team who will pay attention, and apply their skill to help you through your challenges!

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  3. I'm so happy you know whats going on. The stress associated with your search must have been tremendous. You are such a lovely woman, and I hope you find the perfect team for you. I'm always here to listen if you need to rant, or just get rid of excess stress. Anita

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  4. I have this! Haha! It is definitely manageable! I was allergic to the first set of hormones but I've worked it out since. The biggest issue is fertility, but even then it can be worked out. I have a friend who has it much worse than I do. She has been feeling WAY better since she got her diagnoses. It's pretty common, which is great for us gals. Means it's pretty treatable. Hope this means 2012 will be much better for you!

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    1. Who is this! If you know me in real life, hit me up! We can talk about hormones and hair and avoiding diabetes...

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